I see the future as something that could come crashing down very fast. Let me put it slightly by way of a comparison. Normal people, and I use the term very deliberately, by this not otherwise able situation - I'm disabled. I'm abnormal. Normal people dont think very much about the medium term future. They think only about the present, which is constantly changing for them or the very far future, which is just an abstraction. For me, its the other way around, my present never changes. So I dont really think about. But the medium term involves my death so I'm quite conscious of what is going to happen to me in about a year, maybe two years, who knows, whereas no one else I know thinks like that.

Every 90 days I lie in a whirling CT machine, dye coursing through my veins, and the doctors look to see whether the tumors in my liver are growing. If they are not, the doctors smile and schedule another scan. The rhythm has been the same since my doctors told me I had stage IV colon cancer two and a half years ago. I live for three months, take a deep breath and hope to start over again. I will probably do this for the rest of my life. Whatever that means.

This is obviously not how I wanted things to turn out, but my wife and I have no regrets; we did everything I could to maximize my odds. And we want to thank everyone who has so graciously helped us. The really weird part of all this is that I'm not depressed. I'm not in denial (I assure you, I am fully aware of what is going to happen), nor am I whistling in the dark, but after having felt crappy and sick for 11 months, to finally be fully healthy again is so exhilarating that it's a wonderful emotional buoy. So I am going to enjoy each day very fully, and play hard with my kids until I can't.

I began to realize that coming face to face with my own mortality, in a sense, had changed both nothing and everything. Before my cancer was diagnosed, I knew that someday I would die, but I didn’t know when. After the diagnosis, I knew that someday I would die, but I didn’t know when. But now I knew it acutely. The problem wasn’t really a scientific one. The fact of death is unsettling. Yet there is no other way to live.

None of this was supposed to happen. At 38, I wasn’t supposed to lie on my back in the E.R. on a late December morning and be told by a teary radiation oncology resident that the pain I’d been having for two months — that I’d been assured was from having a weak core after months of chemo — was actually from a tumor that had devoured my L2 vertebra. John wasn’t supposed to have to hold me up on the toilet. Put my pants on for me. Do Christmas Eve for the children without me. I’m not supposed to be thinking about where he will sit and hold my hand as I take my last breath.

So maybe I don’t try to figure it out. Maybe I just aim to get the couch right: strong bones, high-quality leather, something earthy and animal and real. A surface that knows something of what it was to be alive, that warms to our touch and cools in our absence. Also: an expansive bench that fits all of us. Something that will hold us through everything that lies ahead — the loving, collapsing and nuzzling. The dying, the grieving.

Downstairs, the boys gaze at a screen on the old futon in the playroom. We will figure out what to do about them soon enough. They probably already know what’s up and are waiting for us to figure out how to say it. Their very existence is the one dark piece I cannot get right within all this. I can let go of a lot of things: plans, friends, career goals, places in the world I want to see, maybe even the love of my life. But I cannot figure out how to let go of mothering them.