I began to realize that coming face to face with my own mortality, in a sense, had changed both nothing and everything. Before my cancer was diagnosed, I knew that someday I would die, but I didn’t know when. After the diagnosis, I knew that someday I would die, but I didn’t know when. But now I knew it acutely. The problem wasn’t really a scientific one. The fact of death is unsettling. Yet there is no other way to live.

what’s the difference? If I die in two years’ time, what will I do between now and then which I don’t want to do now? The main reason for living longer now is for the sake of my family and my wife. And this is not rationalist bravado entirely. I’ve had a wonderful life. Yes, I’ve done a lot of things I shouldn’t have done. But you know, I’ve had a full, complete life, and there’s nothing more I can do to complete it. Dying when you’re younger is obviously a totally different situation. Or losing a child. I mean, that’s beyond words.

I live by the day. Just sitting in the park, looking at the flowers thinking how beautiful they are. It's almost … not hallucinogenic but it's a much stronger feeling than previously. For me, at the moment, going for a walk in the park with Gail is heaven.

I just thought right away that I wanted to work. ... This is a good job. It's been a good job. Work is the most effective drug there can possibly be. ... I'm on the periphery of a lot of despair, of course. ... You'd have to be stupid not to be. I have my moments when I'm not too thrilled about this whole deal. But at the same time, the songs have never come like this, so I'd have to feel more gratitude than anything else. I'm probably in the intensest creative period of my life.

It could really have an impact if I get it right. Something that will get the next generation to see there is a way to think about politics that is not just the way we've been habituated to do it. I care about that and I think I can do it.

But if I was sitting in an armchair with bits and pieces of rubber sticking out of me and my son came over and said, you know, would you like a banana? Wink once for yes, wink twice for no, I dont think the interest of the conversation would get me past the sense that this is horrible. It's horrible for me but above all, horrible for them. There are things worse than death.

This cockroach-like existence is cumulatively intolerable even though on any given night it is perfectly manageable. “Cockroach” is of course an allusion to Kafka’s Metamorphosis, in which the protagonist wakes up one morning to discover that he has been transformed into an insect. The point of the story is as much the responses and incomprehension of his family as it is the account of his own sensations, and it is hard to resist the thought that even the best-meaning and most generously thoughtful friend or relative cannot hope to understand the sense of isolation and imprisonment that this disease imposes upon its victims.

I think the only life experience that I have to offer out of this is something we all know in the abstract but don't experience in practice very much. That is that you can survive an awful lot of bad stuff, so long as your mind is intact. I'm afraid that's the only life experience I have to offer.

But the satisfactions of compensation are notoriously fleeting. There is no saving grace in being confined to an iron suit, cold and unforgiving. The pleasures of mental agility are much overstated, inevitably—as it now appears to me—by those not exclusively dependent upon them. Much the same can be said of well-meaning encouragements to find nonphysical compensations for physical inadequacy. That way lies futility. Loss is loss, and nothing is gained by calling it by a nicer name. My nights are intriguing; but I could do without them.

So it seems to be my responsibility, particularly to my children, also to my wife and friends, is not to be Pollyanna and pretend everything's okay no one would take me seriously if I said that but it's to be as present in their lives now as I can be so that in years to come, they don't feel either guilty or bad at my having been left out of their lives, that they feel still a very strong not a memory of particular actions but a memory of a complete family rather than a broken one. That seems to be something I can do or try to do.