Did the Victorians fear death? As Death says in one of my own books, most men don't fear death, they fear those things – the knife, the shipwreck, the illness, the bomb – that proceed, by micro seconds if you're lucky and many years if you're not, the moment of death.

I’ve had a couple of ex-girlfriends sort of accuse me of having a personality disorder! … No, I don’t know. I’ve always been afraid of death. I’ve never wanted to die. Last year, I watched this guy die in Red Rock. It was this horrible freak accident thing. He fell and he cracked his head and basically just bled out. That was the first time I’d ever actually seen a climbing accident like that. It was kind of sobering — he was even wearing a helmet — it was a reminder of how dangerous climbing can be if things go wrong even when you have all the ropes on.

These matters have become discussable with one’s friends, not, of course, as a frequent part of gossip over lunch in the dining room (our only communal occasion) but from time to time, perhaps when admiring someone’s stoicism if their frailty is becoming painfully apparent, or feeling sad at someone else’s inability to accept what seems to be imminent. As a result of this openness, I think that most of the people here would consider it foolish to be frightened of being dead. All of us, however, feel some degree of anxiety about the process of dying.

But Larkin was different. He knew it would end in silence, and he was afraid of the silence. He didn’t like the idea of not being here. I’m not like that – and my death might come as a relief to quite a few people. I’d rather like it not to hurt, that’s all.

My solution has been to scroll through my life, my thoughts, my fantasies, my memories, mis-memories, and the like until I have chanced upon events, people, or narratives that I can employ to divert my mind from the body in which it is encased. These mental exercises have to be interesting enough to hold my attention and see me through an intolerable itch in my inner ear or lower back; but they also have to be boring and predictable enough to serve as a reliable prelude and encouragement to sleep. It took me some time to identify this process as a workable alternative to insomnia and physical discomfort and it is by no means infallible. But I am occasionally astonished, when I reflect upon the matter, at how readily I seem to get through, night after night, week after week, month after month, what was once an almost insufferable nocturnal ordeal. I wake up in exactly the position, frame of mind, and state of suspended despair with which I went to bed—which in the circumstances might be thought a considerable achievement.

I was forced to think very hard about what it meant to be me, what it means to be a person who is only a brain. Pascal's 'thinking reed' really does capture it, because I'm just a bunch of dead muscles thinking.

But the satisfactions of compensation are notoriously fleeting. There is no saving grace in being confined to an iron suit, cold and unforgiving. The pleasures of mental agility are much overstated, inevitably—as it now appears to me—by those not exclusively dependent upon them. Much the same can be said of well-meaning encouragements to find nonphysical compensations for physical inadequacy. That way lies futility. Loss is loss, and nothing is gained by calling it by a nicer name. My nights are intriguing; but I could do without them.

I don't believe in an afterlife. I don't believe in a single or multiple godhead. I respect people who do, but I don't believe it myself. But there's a big but which enters in here. I am much more conscious than I ever was, for obvious reasons, of what it will mean to people left behind once I'm dead. It won't mean anything for me. But it will mean a lot to them. ... So in one curious way I've come to believe in the afterlife as a place where I still have moral responsibilities, just as I do in this life except that I can only exercise them before I get there. Once I get there, it'll be too late.

I see the future as something that could come crashing down very fast. Let me put it slightly by way of a comparison. Normal people, and I use the term very deliberately, by this not otherwise able situation - I'm disabled. I'm abnormal. Normal people dont think very much about the medium term future. They think only about the present, which is constantly changing for them or the very far future, which is just an abstraction. For me, its the other way around, my present never changes. So I dont really think about. But the medium term involves my death so I'm quite conscious of what is going to happen to me in about a year, maybe two years, who knows, whereas no one else I know thinks like that.

This cockroach-like existence is cumulatively intolerable even though on any given night it is perfectly manageable. “Cockroach” is of course an allusion to Kafka’s Metamorphosis, in which the protagonist wakes up one morning to discover that he has been transformed into an insect. The point of the story is as much the responses and incomprehension of his family as it is the account of his own sensations, and it is hard to resist the thought that even the best-meaning and most generously thoughtful friend or relative cannot hope to understand the sense of isolation and imprisonment that this disease imposes upon its victims.