Deprivation of the ability to speak is more like an attack of impotence, or the amputation of part of the personality. To a great degree, in public and private, I “was” my voice. All the rituals and etiquette of conversation, from clearing the throat in preparation for the telling of an extremely long and taxing joke to (in younger days) trying to make my proposals more persuasive as I sank the tone by a strategic octave of shame, were innate and essential to me. I have never been able to sing, but I could once recite poetry and quote prose and was sometimes even asked to do so.

But it was quite intense to be the first Black person that my German friends had seen. Actually laid eyes, and hands, on. And there was the German language, which I had to learn, and the German kids learned British English, so my American English was frowned upon. … Maybe I write like I do because I spent those years in the cauldron of not fluently speaking the native language of my classmates. Those several years of being told that the tongue I spoke wasn’t right.

To so many people, I am no longer just myself. I am a reminder of a thought that is difficult for the rational brain to accept: that the elements that constitute our bodies might fail at any moment. When I originally got my diagnosis at age 35, all I could think to say was, “But I have a son.” It was the best argument I had. I can’t end. This world can’t end. It had just begun. A tragedy is like a fault line. A life is split into a before and an after, and most of the time, the before was better.

But the satisfactions of compensation are notoriously fleeting. There is no saving grace in being confined to an iron suit, cold and unforgiving. The pleasures of mental agility are much overstated, inevitably—as it now appears to me—by those not exclusively dependent upon them. Much the same can be said of well-meaning encouragements to find nonphysical compensations for physical inadequacy. That way lies futility. Loss is loss, and nothing is gained by calling it by a nicer name. My nights are intriguing; but I could do without them.

Missing a few months of feeling awful, being dead, versus not missing those months of feeling awful. Dead, at least theoretically, is the less painful of the two options, assuming that dead equals not being at all. Whatever terror there is lies in the present fear of dying, not so much of death. The stoics tell me that I’ve been ‘dead’ before, prior to my birth, and that was no hardship, was it? Back to Beckett, I think.

I’d never been envious of those who believe in an afterlife until now. It would be so much cosier than dissolution. She’s gone to the next room. Nope, can’t manage it. She’s gone to dust and rubble. Gone nowhere. No where to go to. No she to go to it. Much easier to be convinced you will be met in Elysian fields by a thousand virgins, or drink from fountains of Manhattans. I can’t even get close to what they call faith, though I quite see Pascal had a point.

The print size in my mind decreased with time’s incremental decline, and as I arrived at the last word – weeks – it suddenly struck me, with all the force of the fullest sense of the word ‘struck’, that this could actually be his answer and not just the logical next time period in my sentence. Every cell in my body, except those responsible for maintaining a reasonable, calm exterior, was now lindy-hopping at that possibility, the only one that hadn’t occurred to me until that moment.

Dear God, not a bucket list? Really, there is nothing that I want to do before I die, except perhaps just lie back and enjoy the morphine, daydreaming my way to oblivion.