everyone saw me as a victim of a terrible illness. But what happened to my body was far less frightening than what happened to my soul. The stroke wiped out my faith. It took me so far from my guru that I felt my oxygen cord had been cut. ... I couldn't put the two together. Then I thought, maybe the stroke is a form of grace, and I hunted for that: how could the stroke be seen as grace? ... The stroke was giving me lessons, advanced lessons. ... It brought me into my soul, and that's grace.
Recorded
Sara Davidson, Keynote talk at a conference on body and soul, Hyatt Regency, San Francisco, reported in the New York Times Magazine, The New York Times Magazine, 21 May 2000
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When Milton's Satan stood in the pit of hell and raged at heaven, he was merely a trifle miffed compared to how I felt on that day. I felt totally alone, with the world receding away from me in every direction, and you could have used my anger to weld steel. Only my family and the fact I had fans in the medical profession, who were able to give me useful advice, got me through that moment.
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Written for the Alzheimer's Society in 2008; reprinted by the Observer in the week of his death, The Guardian, 2008
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But the satisfactions of compensation are notoriously fleeting. There is no saving grace in being confined to an iron suit, cold and unforgiving. The pleasures of mental agility are much overstated, inevitably—as it now appears to me—by those not exclusively dependent upon them. Much the same can be said of well-meaning encouragements to find nonphysical compensations for physical inadequacy. That way lies futility. Loss is loss, and nothing is gained by calling it by a nicer name. My nights are intriguing; but I could do without them.
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The New York Review of Books, 14 January 2010
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Thank God I found sobriety. I could sustain myself with my work, my reading, the movies, my friends. And walking, walking, walking. Of all the purposes of education, I think the most useful is this: It prepares you to keep yourself entertained. It gives you a better chance of an interesting job. ... I can't remember the last time I felt bored. I can't eat, drink or talk, and yet I have so many other resources to keep myself entertained. I think I must be a case study.
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Roger Ebert's Journal, rogerebert.com, 6 November 2010
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Deprivation of the ability to speak is more like an attack of impotence, or the amputation of part of the personality. To a great degree, in public and private, I “was” my voice. All the rituals and etiquette of conversation, from clearing the throat in preparation for the telling of an extremely long and taxing joke to (in younger days) trying to make my proposals more persuasive as I sank the tone by a strategic octave of shame, were innate and essential to me. I have never been able to sing, but I could once recite poetry and quote prose and was sometimes even asked to do so.
I try but I can’t think of a single aspect of having cancer, start to finish, that isn’t an act in a pantomime in which my participation is guaranteed however I believe I choose to play each scene. I have been given this role. (There, see? Instant victim.) I have no choice but to perform and to be embarrassed to death. I wish you long life.
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London Review of Books, 11 September 2014
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