What is the hardest thing that has happened to you, and what did you carry out of it?

I don’t think I could. Of course I’m saying this on American soil. I’m facing a few more months of work in this city, but at the end of it, I will be returning to South Africa. I would like to believe that if for some reason the situation deteriorated to the point where I was told, “If you leave South Africa, you can never come back,” I’d stay there. There were periods in my life when I could have been seduced away. I am incredibly fortunate that the government took away my passport at the point when I was most open to seduction. With my passport gone, I could have left on a one-way ticket. But the issue was so starkly highlighted that I had no problem in saying, “No.”

everyone saw me as a victim of a terrible illness. But what happened to my body was far less frightening than what happened to my soul. The stroke wiped out my faith. It took me so far from my guru that I felt my oxygen cord had been cut. ... I couldn't put the two together. Then I thought, maybe the stroke is a form of grace, and I hunted for that: how could the stroke be seen as grace? ... The stroke was giving me lessons, advanced lessons. ... It brought me into my soul, and that's grace.

When Milton's Satan stood in the pit of hell and raged at heaven, he was merely a trifle miffed compared to how I felt on that day. I felt totally alone, with the world receding away from me in every direction, and you could have used my anger to weld steel. Only my family and the fact I had fans in the medical profession, who were able to give me useful advice, got me through that moment.

Writing became a therapy. First of all, it meant I was reconstructing my own existence. It was also an act of defiance. I wasn’t supposed to write. ... I evolved all kinds of mental exercises, even went back to those subjects which I said I hated in school, in particular mathematics. ... You know, anything to keep the mind alive.

But the satisfactions of compensation are notoriously fleeting. There is no saving grace in being confined to an iron suit, cold and unforgiving. The pleasures of mental agility are much overstated, inevitably—as it now appears to me—by those not exclusively dependent upon them. Much the same can be said of well-meaning encouragements to find nonphysical compensations for physical inadequacy. That way lies futility. Loss is loss, and nothing is gained by calling it by a nicer name. My nights are intriguing; but I could do without them.

Thank God I found sobriety. I could sustain myself with my work, my reading, the movies, my friends. And walking, walking, walking. Of all the purposes of education, I think the most useful is this: It prepares you to keep yourself entertained. It gives you a better chance of an interesting job. ... I can't remember the last time I felt bored. I can't eat, drink or talk, and yet I have so many other resources to keep myself entertained. I think I must be a case study.

Deprivation of the ability to speak is more like an attack of impotence, or the amputation of part of the personality. To a great degree, in public and private, I “was” my voice. All the rituals and etiquette of conversation, from clearing the throat in preparation for the telling of an extremely long and taxing joke to (in younger days) trying to make my proposals more persuasive as I sank the tone by a strategic octave of shame, were innate and essential to me. I have never been able to sing, but I could once recite poetry and quote prose and was sometimes even asked to do so.

Look, life is pretty dreadful most of the time. Even in the country that's so pretty with the flowers and leaves and sunshine. And I was abandoned when he died! I'm alone. I feel like an old bubba. And I'm not kind all of the time, I'm not nice all the time.

I try but I can’t think of a single aspect of having cancer, start to finish, that isn’t an act in a pantomime in which my participation is guaranteed however I believe I choose to play each scene. I have been given this role. (There, see? Instant victim.) I have no choice but to perform and to be embarrassed to death. I wish you long life.

One thing, it's too big a subject and I want to talk about it on paper if I talk about it at all. But I can say this much, because I thought the life that my father and mother would have had together was cut short and something of what they might have achieved I hope that I'm achieving in my work.

Downstairs, the boys gaze at a screen on the old futon in the playroom. We will figure out what to do about them soon enough. They probably already know what’s up and are waiting for us to figure out how to say it. Their very existence is the one dark piece I cannot get right within all this. I can let go of a lot of things: plans, friends, career goals, places in the world I want to see, maybe even the love of my life. But I cannot figure out how to let go of mothering them.

To so many people, I am no longer just myself. I am a reminder of a thought that is difficult for the rational brain to accept: that the elements that constitute our bodies might fail at any moment. When I originally got my diagnosis at age 35, all I could think to say was, “But I have a son.” It was the best argument I had. I can’t end. This world can’t end. It had just begun. A tragedy is like a fault line. A life is split into a before and an after, and most of the time, the before was better.

But it was quite intense to be the first Black person that my German friends had seen. Actually laid eyes, and hands, on. And there was the German language, which I had to learn, and the German kids learned British English, so my American English was frowned upon. … Maybe I write like I do because I spent those years in the cauldron of not fluently speaking the native language of my classmates. Those several years of being told that the tongue I spoke wasn’t right.

I moved to Argentina, then back to Tokyo and then to Anchorage, in Alaska, where I ran a restaurant. After 50 days the restaurant burnt down – an electrical fire. I lost my dream. I lost my money. I lost my passion. I thought about suicide, but thinking of my family and my kids made me realise I had to wake up.

God has never let me down. He’s a key factor in guiding my decisions and feeling safe within them. My wife and I suffered three miscarriages, one of them quite late in the pregnancy. Without faith, we would have retreated into our own corners to lick our wounds, but our love increased.

I went through some really terrible times. I don’t know whether I should really even mention it, but you mentioned that I had to go to prison and all that stuff. I was in a state where they had me in a straitjacket at one time. Can you understand what it would feel like to be in a straitjacket? I know. I couldn’t either, but I was, and it was brought about by sort of a drug psychosis in prison. I mean I just went completely… But it was tough, it was tough. I mean at that time they put you in — there’s a place in New York they used to call the Tombs. You’ve probably heard of it. I mean it was like a living tomb, with all the people. So I was there, and the withdrawal — physical symptoms, which were unbelievable.

Well, I’ve had injuries, but I’d always get out on stage because I think the body is a wonderful thing, and you have to treat it with respect. We haven’t even reached our potential for what we can do as human beings. I went through a period where I had hip trouble. I thought it was just a typical pulled muscle, so I used liniment, and warmed up more than I thought was necessary, all the things we learn to do when you have a typical dance-related injury or sore muscle. Over the months, it didn’t go away. In fact, it got worse. Eventually I realized that I had a very serious problem, and it was the first time that dance had let me down. What had been my salvation and my security with my body was abandoning me. This was emotionally and physically devastating.